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Research Studies is a monthly compilation of research articles funded by AHRQ or authored by AHRQ researchers and recently published in journals or newsletters.
Results
1 to 25 of 45 Research Studies Displayed
Fuji KT, Abbott AA, Galt KA
A mixed-methods evaluation of standalone personal health record use by patients with type 2 diabetes.
The purpose of this study was to compare use of a standalone personal health records (PHRs) by patients with Type 2 diabetes to usual care through assessment of self-care behaviors, and short-term impact on social cognitive outcomes and hemoglobin A1c (HbA1c). Five themes emerged from the qualitative analysis describing participants' experiences with the PHR and identifying reasons for lack of engagement. Study findings revealed low PHR uptake and minimal impact on study outcomes, including lack of communication and information-sharing between patients and providers.
AHRQ-funded; HS018625.
Citation:
Fuji KT, Abbott AA, Galt KA .
A mixed-methods evaluation of standalone personal health record use by patients with type 2 diabetes.
Perspect Health Inf Manag 2021 Fall;18(4):1e..
Keywords:
Electronic Health Records (EHRs), Health Information Technology (HIT), Diabetes, Patient Self-Management, Chronic Conditions, Patient and Family Engagement
Oikonomidi T, Ravaud P, James A
An international, mixed-methods study of the perceived intrusiveness of remote digital diabetes monitoring.
This paper describes an international online vignette-based survey to assess the relationship between remote digital monitoring (RDM) modalities for diabetes and intrusiveness in patients’ lives. The survey was conducted from February-June 2019 in 30 countries with 1010 participants. A total of 2680 vignette-assessments were completed with 52% on type 1 diabetes. Increased intrusiveness was associated with food monitoring compared with glucose- and PA-monitoring alone and permanent monitoring with real-time physician-generated feedback compared with monitoring for a week with feedback. Public-sector data handling was associated with decreased intrusiveness as compared with the private sector.
AHRQ-authored.
Citation:
Oikonomidi T, Ravaud P, James A .
An international, mixed-methods study of the perceived intrusiveness of remote digital diabetes monitoring.
Mayo Clin Proc 2021 May;96(5):1236-47. doi: 10.1016/j.mayocp.2020.07.040..
Keywords:
Telehealth, Health Information Technology (HIT), Diabetes, Chronic Conditions, Lifestyle Changes, Patient Self-Management
Ozkaynak M, Valdez R, Hannah K
Understanding gaps between daily living and clinical settings in chronic disease management: qualitative study.
This study’s objective was to characterize gaps from the patient’s perspective between health-related activities across home-based and clinical settings in the management of chronic conditions. Patients were recruited from an anticoagulation clinic of an urban, western mountain system and primary interviews were conducted with 39 patients and 4 providers. The causes of gaps included clinician recommendations not fitting into patients’ daily routines; recommendations not fitting into a patients’ living contexts; and no information transfer across settings. Consequences of these gaps included increased cognitive and physical workload on the patient, poor patient satisfaction, and compromised adherence to the therapy plan.
AHRQ-funded; HS024092.
Citation:
Ozkaynak M, Valdez R, Hannah K .
Understanding gaps between daily living and clinical settings in chronic disease management: qualitative study.
J Med Internet Res 2021 Feb 25;23(2):e17590. doi: 10.2196/17590..
Keywords:
Chronic Conditions, Care Management, Care Coordination, Patient Self-Management, Health Information Technology (HIT)
Oikonomidi T, Ravaud P, Cosson E
Evaluation of patient willingness to adopt remote digital monitoring for diabetes management.
Investigators sought to identify the minimum effectiveness patients report they require to adopt 36 different remote digital monitoring (RDM) scenarios. Adults with type 1 or type 2 diabetes living in 30 countries assessed three randomly selected scenarios from a total of 36 that described different combinations of digital monitoring tools. The investigators found that patients required greater health benefits to adopt more intrusive RDM modalities, food monitoring, and real-time feedback by a health care professional. They recommended that patient monitoring devices be designed to be minimally intrusive.
AHRQ-authored.
Citation:
Oikonomidi T, Ravaud P, Cosson E .
Evaluation of patient willingness to adopt remote digital monitoring for diabetes management.
JAMA Netw Open 2021 Jan;4(1):e2033115. doi: 10.1001/jamanetworkopen.2020.33115..
Keywords:
Telehealth, Health Information Technology (HIT), Diabetes, Chronic Conditions, Care Management, Patient Self-Management, Patient Adherence/Compliance
Howland C, Despins L, Sindt J
Primary care clinic nurse activities with a telehealth monitoring system.
The purpose of this study was to evaluate differences in the types of nursing activities and communication processes reported in a primary care clinic between patients using a home-based monitoring system to electronically communicate self-monitored blood glucose and blood pressure values and those assuming usual care. Significant differences were identified for the direct care nursing activities of providing lifestyle and health education, medication adjustments, and patient follow-up, providing evidence of greater nursing activity reported in a primary care clinic in patients who utilized a home-based monitoring system.
AHRQ-funded; HS017035.
Citation:
Howland C, Despins L, Sindt J .
Primary care clinic nurse activities with a telehealth monitoring system.
West J Nurs Res 2021 Jan;43(1):5-12. doi: 10.1177/0193945920923082..
Keywords:
Telehealth, Health Information Technology (HIT), Nursing, Primary Care, Clinician-Patient Communication, Communication, Patient Self-Management, Hypertension, Diabetes, Chronic Conditions
Flynn G, Jia H, Reynolds NR
Protocol of the randomized control trial: the WiseApp trial for improving health outcomes in PLWH (WiseApp).
This paper outlines the protocol for the WiseApp randomized control trial. The WiseApp contains real-time medication monitoring linking an electronic pill bottle and fitness tracker to the app, helping persons living with HIV (PLWH) self-manage their medication adherence and improve their overall quality of life. The primary objective of the trial is to test the effect of the WiseApp's medication adherence features on antiretroviral adherence in underserved PLWH in New York City. The real-time monitoring of the WiseApp has the potential to help providers initiate interventions to help patients resume treatment before drug resistance begins.
AHRQ-funded; HS025071.
Citation:
Flynn G, Jia H, Reynolds NR .
Protocol of the randomized control trial: the WiseApp trial for improving health outcomes in PLWH (WiseApp).
BMC Public Health 2020 Nov 25;20(1):1775. doi: 10.1186/s12889-020-09688-0..
Keywords:
Human Immunodeficiency Virus (HIV), Medication, Telehealth, Health Information Technology (HIT), Patient Adherence/Compliance, Patient Self-Management, Chronic Conditions, Care Management, Healthcare Delivery
Presley C, Agne A, Shelton T
Mobile-enhanced peer support for African Americans with Type 2 diabetes: a randomized controlled trial.
This study compared the effectiveness of a community-based diabetes self-management education (DSME) plus mobile health (mHealth)-enhanced peer support intervention to community-based DSME alone for African American adults with poorly controlled type 2 diabetes. This randomized controlled trial took place in Jefferson County, Alabama within a safety-net healthcare system with a group diagnosed with type 2 diabetes and hemoglobin A1C ≥ 7.5%. The intervention group reviewed community-based DSME plus 6 months of mHealth-enhanced peer support, including 12 weekly phone calls, then 3 monthly calls from community health workers. The control group received community based DSME only. Primary outcomes were lower A1C and secondary outcomes were lower diabetes distress, depressive symptoms, self-efficacy or confidence in their ability to manage diabetes, and social support. Of 120 participants selected, 97 completed the study. Both groups experienced clinical meaning reduction in A1C. Participants in the intervention group experienced a significantly larger reduction in diabetes distress compared to the control group.
AHRQ-funded; HS019465.
Citation:
Presley C, Agne A, Shelton T .
Mobile-enhanced peer support for African Americans with Type 2 diabetes: a randomized controlled trial.
J Gen Intern Med 2020 Oct;35(10):2889-96. doi: 10.1007/s11606-020-06011-w..
Keywords:
Telehealth, Health Information Technology (HIT), Patient Self-Management, Diabetes, Chronic Conditions, Racial / Ethnic Minorities, Community-Based Practice, Comparative Effectiveness, Patient-Centered Outcomes Research, Evidence-Based Practice, Outcomes, Education: Patient and Caregiver
Koopman RJ, Canfield SM, Belden JL
Home blood pressure data visualization for the management of hypertension: designing for patient and physician information needs.
This study examined whether using home blood pressure visualization tools helps management of hypertension for both patients and physicians. A multidisciplinary team used iterative user-centered design to create a blood pressure visualization EHR prototype that included patient-generated blood pressure data. The study included an attitude and behavior survey and 10 focus groups with 16 patients and 24 physicians. Most patients measured their blood pressure at home, but only half shared data with their physician. Data visualization helped patients and physicians have a fuller understanding of the blood pressure “story” and helped with patient-physician interactions to better control hypertension.
AHRQ-funded; HS023328.
Citation:
Koopman RJ, Canfield SM, Belden JL .
Home blood pressure data visualization for the management of hypertension: designing for patient and physician information needs.
BMC Med Inform Decis Mak 2020 Aug 18;20(1):195. doi: 10.1186/s12911-020-01194-y..
Keywords:
Hypertension, Blood Pressure, Chronic Conditions, Electronic Health Records (EHRs), Health Information Technology (HIT), Clinician-Patient Communication, Communication, Patient Self-Management, Care Management
Alberts NM, Badawy SM, Hodges J
Development of the incharge health mobile app to improve adherence to hydroxyurea in patients with sickle cell disease: user-centered design approach.
This study looked at how use of a newly developed mobile app called InCharge Health can help sickle cell disease (SCD) patients adhere to their prescribed medication use of hydroxyurea. Four phases were used to develop the mobile app with substantial input from users and by mapping the Health Belief Model (HBM) as the framework that guided the choice for its components. More than half of the patients reported potentially low health literacy. Preferred patient app features included 7 key components: medication reminders and tracker, disease education, communication, personalization, motivation, support during pain episodes, and social support. This information was translated into features within the app.
AHRQ-funded; HS023011.
Citation:
Alberts NM, Badawy SM, Hodges J .
Development of the incharge health mobile app to improve adherence to hydroxyurea in patients with sickle cell disease: user-centered design approach.
JMIR Mhealth Uhealth 2020 May 8;8(5):e14884. doi: 10.2196/14884..
Keywords:
Sickle Cell Disease, Health Information Technology (HIT), Patient Adherence/Compliance, Patient Self-Management, Medication
Bilgrami Z, Abutaleb A, Chudy-Onwugaje K
Effect of TELEmedicine for inflammatory bowel disease on patient activation and self-efficacy.
This study examined the use of a web-based monitoring system called TELEmedicine to remotely monitor changes in patient activation and self-efficacy for inflammatory bowel disease (IBD) patients. This multicenter, randomized controlled trial enrolled 222 adults with IBD who had experienced an IBD flare within 2 years prior to the trial. Changes in self-efficacy were not significantly different between the two groups although patient activation scores were.
AHRQ-funded; HS018975.
Citation:
Bilgrami Z, Abutaleb A, Chudy-Onwugaje K .
Effect of TELEmedicine for inflammatory bowel disease on patient activation and self-efficacy.
Dig Dis Sci 2020 Jan;65(1):96-103. doi: 10.1007/s10620-018-5433-5..
Keywords:
Telehealth, Digestive Disease and Health, Patient Self-Management, Care Management, Health Information Technology (HIT), Patient and Family Engagement
Mayberry LS, Lyles CR, Oldenburg B
mHealth interventions for disadvantaged and vulnerable people with type 2 diabetes.
The authors evaluate the impact of diabetes self-management interventions delivered via mobile device and/or Internet on glycemic control of disadvantaged/vulnerable adults with type 2 diabetes. They found evidence suggesting that digital interventions can improve diabetes control, healthcare utilization, and healthcare costs. More research to substantiate these early findings is recommended; the authors suggest that many issues remain in order to optimize the impact of digital interventions on the health outcomes of disadvantaged/vulnerable persons with diabetes.
AHRQ-funded; HS022408; HS025429.
Citation:
Mayberry LS, Lyles CR, Oldenburg B .
mHealth interventions for disadvantaged and vulnerable people with type 2 diabetes.
Curr Diab Rep 2019 Nov 25;19(12):148. doi: 10.1007/s11892-019-1280-9.
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Keywords:
Diabetes, Vulnerable Populations, Patient Self-Management, Telehealth, Health Information Technology (HIT), Patient-Centered Healthcare, Low-Income, Chronic Conditions
Cho H, Flynn G, Saylor M
Use of the FITT framework to understand patients' experiences using a real-time medication monitoring pill bottle linked to a mobile-based HIV self-management app: a qualitative study.
This study examined the usefulness of a mobile app linked to a real-time medication monitoring pill bottle that reminds HIV patients to take their medication. Thirty-eight randomized patients living with HIV who were aged 18 and older, owned a smartphone and were mostly medication-compliant were selected. The majority were African-American, had a high school education or less, and had a median income of less than $20,000. The Fit between Individuals, Task and Technology (FITT) framework was used to determine the fit between the individuals and the technology. Hindrances to the technology included: ease of use, HIV-related stigma and disclosure of HIV status, customized alert of medication time windows, and preference for device design.
AHRQ-funded; HS025071.
Citation:
Cho H, Flynn G, Saylor M .
Use of the FITT framework to understand patients' experiences using a real-time medication monitoring pill bottle linked to a mobile-based HIV self-management app: a qualitative study.
Int J Med Inform 2019 Nov;131:103949. doi: 10.1016/j.ijmedinf.2019.08.009..
Keywords:
Patient Experience, Patient Adherence/Compliance, Medication, Patient Self-Management, Health Information Technology (HIT)
Vizer LM, Eschler j, KOO BM
"It's not just technology, it's people": constructing a conceptual model of shared health informatics for tracking in chronic illness management.
To inform development of effective technologies that aid tracking of health indicators to support chronic illness management, this study aimed to construct a health informatics model that accurately describes the work and social context of that tracking work. The investigators concluded that the resulting CoMSHI yielded a more detailed and nuanced viewpoint of tracking in support of chronic illness management and could inform technology design to improve tracking tools to support people in more confident and capable chronic illness management.
AHRQ-funded; HS021590.
Citation:
Vizer LM, Eschler j, KOO BM .
"It's not just technology, it's people": constructing a conceptual model of shared health informatics for tracking in chronic illness management.
J Med Internet Res 2019 Apr 29;21(4):e10830. doi: 10.2196/10830..
Keywords:
Care Management, Chronic Conditions, Health Information Technology (HIT), Patient Self-Management
Chung CF, Wang Q, Schroeder J
Identifying and planning for individualized change: patient-provider collaboration using lightweight food diaries in healthy eating and irritable bowel syndrome.
This study examined if the use of a photo-based food diary app will help patients with irritable bowel syndrome (IBS) help gather food and symptom data to help their doctors with disease management. The investigators designed and developed Foodprint which includes a mobile and web app and pre-visit note to go to experts which communicate an individual’s expectations and questions. A control group and a group with IBS were used to determine the effectiveness of Foodprint.
AHRQ-funded; HS023654.
Citation:
Chung CF, Wang Q, Schroeder J .
Identifying and planning for individualized change: patient-provider collaboration using lightweight food diaries in healthy eating and irritable bowel syndrome.
Proc ACM Interact Mob Wearable Ubiquitous Technol 2019 Mar;3(1). doi: 10.1145/3314394..
Keywords:
Chronic Conditions, Clinician-Patient Communication, Communication, Digestive Disease and Health, Health Information Technology (HIT), Lifestyle Changes, Nutrition, Patient Self-Management
Beauchemin M, Gradilla M, Baik D
A multi-step usability evaluation of a self-management app to support medication adherence in persons living with HIV.
The authors developed a mHealth app (WiseApp) for HIV self-management to help persons living with HIV (PLWH) self-manage their health. The purpose of this study was to evaluate the usability of the WiseApp. The results of the cognitive walkthrough with both experts and end-users informed iterative refinements to the WiseApp and finalization of a mHealth app for PLWH to better self-manage their health.
AHRQ-funded; HS025071.
Citation:
Beauchemin M, Gradilla M, Baik D .
A multi-step usability evaluation of a self-management app to support medication adherence in persons living with HIV.
Int J Med Inform 2019 Feb;122:37-44. doi: 10.1016/j.ijmedinf.2018.11.012..
Keywords:
Health Information Technology (HIT), Human Immunodeficiency Virus (HIV), Medication, Patient Adherence/Compliance, Patient Self-Management
Winkler SL, Kairalla JA, Cooper R
Comparison of functional benefits of self-management training for amputees under virtual world and e-learning conditions.
This project used a randomized design to compare two methods of disseminating an evidence-based self-management intervention for amputees, which included, avatar-based virtual world and e-learning environments. The investigators found that the virtual world group had a significantly higher dropout rate than the e-learning group.
AHRQ-funded; HS022021.
Citation:
Winkler SL, Kairalla JA, Cooper R .
Comparison of functional benefits of self-management training for amputees under virtual world and e-learning conditions.
Journal of Alternative Medicine Research 2018;10(1):65-72..
Keywords:
Communication, Education: Patient and Caregiver, Evidence-Based Practice, Health Information Technology (HIT), Patient Self-Management, Training
Cho H, Porras T, Baik D
Understanding the predisposing, enabling, and reinforcing factors influencing the use of a mobile-based HIV management app: a real-world usability evaluation.
In this study, the authors conducted an in-depth analysis of users' experiences using an HIV self-management app. Usability evaluation in a real-world setting enabled the investigators to measure users' actual experiences when interacting with the app during their everyday lives. They suggest that their work highlighted the importance of using mobile technology for persons living with HIV, specifically those with low income/housing instability.
AHRQ-funded; HS023963.
Citation:
Cho H, Porras T, Baik D .
Understanding the predisposing, enabling, and reinforcing factors influencing the use of a mobile-based HIV management app: a real-world usability evaluation.
Int J Med Inform 2018 Sep;117:88-95. doi: 10.1016/j.ijmedinf.2018.06.007..
Keywords:
Health Information Technology (HIT), Human Immunodeficiency Virus (HIV), Patient-Centered Outcomes Research, Patient Self-Management
Mogul DB, Henderson ML, Bridges JFP
Expanding the Facebook platform to engage and educate online communities.
This article discusses the development and use of a mobile application (app) called Liver Space that was developed through Facebook’s platform. This app is for the pediatric liver community including patients and caregivers. Unlike most Facebook health groups, this one is vetted by healthcare providers who are specialists. The app provides up-to-date information and includes emerging news, summaries from important scholarly journals and human interest stories. There is an “ask an expert” function incorporated into Liver Space. Also included in the app is the ability for users to track their labs and weight and to graph the data.
AHRQ-funded; HS023876.
Citation:
Mogul DB, Henderson ML, Bridges JFP .
Expanding the Facebook platform to engage and educate online communities.
Am J Gastroenterol 2018 Apr;113(4):457-58. doi: 10.1038/ajg.2017.450..
Keywords:
Social Media, Education: Patient and Caregiver, Clinician-Patient Communication, Communication, Health Information Technology (HIT), Patient and Family Engagement, Patient Self-Management
Pellegrini CA, Conroy DE, Phillips SM
Daily and seasonal influences on dietary self-monitoring using a smartphone application.
Researchers examined within-person variation in dietary self-monitoring during a 6-month technology-supported weight loss trial as a function of time-varying factors including time in the study, day of the week, and month of the year. They found that participants recorded less as time in the study progressed. Fewer foods were reported on the weekends compared with weekdays. More foods were self-monitored in January compared with October; however, a seasonal effect was not observed.
AHRQ-funded; HS023011.
Citation:
Pellegrini CA, Conroy DE, Phillips SM .
Daily and seasonal influences on dietary self-monitoring using a smartphone application.
J Nutr Educ Behav 2018 Jan;50(1):56-61.e1. doi: 10.1016/j.jneb.2016.12.004.
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Keywords:
Health Information Technology (HIT), Nutrition, Patient Adherence/Compliance, Patient Self-Management, Obesity: Weight Management
Badawy SM, Morrone K, Thompson A
Computer and mobile technology interventions to promote medication adherence and disease management in people with thalassemia.
This study aims to identify and assess the effects of computer and mobile technology interventions designed to facilitate medication adherence and disease management in individuals with thalassemia.
AHRQ-funded; HS023011.
Citation:
Badawy SM, Morrone K, Thompson A .
Computer and mobile technology interventions to promote medication adherence and disease management in people with thalassemia.
Cochrane Database Syst Rev 2017 Dec;2017(12)..
Keywords:
Health Information Technology (HIT), Medication, Patient Adherence/Compliance, Patient-Centered Healthcare, Patient Self-Management
Epstein DA, Lee NB, Kang JH
Examining menstrual tracking to inform the design of personal informatics tools.
The researchers considered why and how women track their menstrual cycles, examining their experiences to extend the field's understanding of personal informatics tools. They found that women track their menstrual cycle for varied reasons that include remembering and predicting their period. Participants described six methods of tracking their menstrual cycles, including use of technology, awareness of their premenstrual physiological states, and simply remembering.
AHRQ-funded; HS023654.
Citation:
Epstein DA, Lee NB, Kang JH .
Examining menstrual tracking to inform the design of personal informatics tools.
Proc SIGCHI Conf Hum Factor Comput Syst 2017 May 02;2017:6876-88. doi: 10.1145/3025453.3025635.
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Keywords:
Health Information Technology (HIT), Patient Self-Management, Women
Karkar R, Schroeder J, Epstein DA
Tummytrials: a feasibility study of using self-experimentation to detect individualized food triggers.
The researchers designed, developed, and evaluated a mobile app that applies a self experimentation framework to support patients suffering from irritable bowel syndrome (IBS) in identifying their personal food triggers. In examining the feasibility of this approach in a field study with 15 IBS patients, they found that participants could use the tool to reliably undergo a self-experiment.
AHRQ-funded; HS023654.
Citation:
Karkar R, Schroeder J, Epstein DA .
Tummytrials: a feasibility study of using self-experimentation to detect individualized food triggers.
Proc SIGCHI Conf Hum Factor Comput Syst 2017 May 2:6850-63. doi: 10.1145/3025453.3025480..
Keywords:
Digestive Disease and Health, Health Information Technology (HIT), Nutrition, Patient Self-Management
Chung CF, Agapie E, Schroeder J
When personal tracking becomes social: examining the use of Instagram for healthy eating.
The researchers aimed to inform the design of tools to support healthy behaviors by understanding how people appropriate Instagram to track and share food data, the benefits they obtain from doing so, and the challenges they encounter. They concluded that participants tracked to support themselves and others in their pursuit of healthy eating goals.
AHRQ-funded; HS023654.
Citation:
Chung CF, Agapie E, Schroeder J .
When personal tracking becomes social: examining the use of Instagram for healthy eating.
Proc SIGCHI Conf Hum Factor Comput Syst 2017 May 2;2017:1674-87. doi: 10.1145/3025453.3025747.
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Keywords:
Health Information Technology (HIT), Lifestyle Changes, Nutrition, Patient Self-Management, Social Media
Schroeder J, Hoffswell J, Chung CF
Supporting patient-provider collaboration to identify individual triggers using food and symptom journals.
The researchers examined patient-provider collaboration to interpret patient-generated data. Irritable bowel syndrome (IBS) management often requires patient-provider collaboration using a patient's food and symptom journal to identify the patient's triggers. Drawing upon individual and collaborative interviews with patients and providers, the researchers found that collaborative review helps improve data comprehension and build mutual trust.
AHRQ-funded; HS023654.
Citation:
Schroeder J, Hoffswell J, Chung CF .
Supporting patient-provider collaboration to identify individual triggers using food and symptom journals.
CSCW 2017 Feb 25;2017:1726-39. doi: 10.1145/2998181.2998276.
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Keywords:
Digestive Disease and Health, Health Information Technology (HIT), Nutrition, Clinician-Patient Communication, Patient Self-Management
Broecker M, Ponto K, Tredinnick R
SafeHOME: promoting safe transitions to the home.
This paper introduces the SafeHome Simulator system, a set of immersive Virtual Reality Training tools and display systems to train patients in safe discharge procedures in captured environments of their actual houses. The aim is to lower patient readmission by significantly improving discharge planning and training. The SafeHOME Simulator is a project currently under review.
AHRQ-funded; HS022548.
Citation:
Broecker M, Ponto K, Tredinnick R .
SafeHOME: promoting safe transitions to the home.
Stud Health Technol Inform 2016;220:51-4.
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Keywords:
Transitions of Care, Health Information Technology (HIT), Patient Safety, Patient Self-Management, Hospital Discharge
