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Search All Research Studies
Topics
- (-) Communication (3)
- Comparative Effectiveness (1)
- (-) Data (3)
- Decision Making (1)
- Electronic Health Records (EHRs) (1)
- Health Information Exchange (HIE) (1)
- Health Information Technology (HIT) (2)
- Outcomes (1)
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 3 of 3 Research Studies DisplayedArcia A, Woollen J, Bakken S
A systematic method for exploring data attributes in preparation for designing tailored infographics of patient reported outcomes.
Tailored visualizations of patient reported outcomes (PROs) are valuable health communication tools to support shared decision making, health self-management, and engagement with research participants, such as cohorts in the NIH Precision Medicine Initiative. The authors of the study present a systematic method to exploring data attributes, with a specific focus on application to self-reported health data. They present two case studies to illustrate how this method affected design decisions particularly with respect to outlier and non-missing zero values.
AHRQ-funded; HS019853; HS022961.
Citation: Arcia A, Woollen J, Bakken S .
A systematic method for exploring data attributes in preparation for designing tailored infographics of patient reported outcomes.
eGEMS 2018 Jan 24;6(1):2. doi: 10.5334/egems.190..
Keywords: Communication, Decision Making, Patient-Centered Healthcare, Patient-Centered Outcomes Research, Outcomes, Data
Meeker D, Jiang X, Matheny ME
A system to build distributed multivariate models and manage disparate data sharing policies: implementation in the scalable national network for effectiveness research.
The authors’ objective was to implement infrastructure that supports the functionality of some existing research networks (e.g., cohort discovery, workflow management, and estimation of multivariate analytic models on centralized data) while adding additional important new features. They were able to implement massively parallel (map-reduce) computation methods and a new policy management system to enable each study initiated by network participants to define the ways in which data may be processed, managed, queried, and shared.
AHRQ-funded; HS019913.
Citation: Meeker D, Jiang X, Matheny ME .
A system to build distributed multivariate models and manage disparate data sharing policies: implementation in the scalable national network for effectiveness research.
J Am Med Inform Assoc 2015 Nov;22(6):1187-95. doi: 10.1093/jamia/ocv017..
Keywords: Communication, Comparative Effectiveness, Data, Health Information Technology (HIT), Policy, Research Methodologies
Kim KK, Joseph JG, Ohno-Machado L
Comparison of consumers' views on electronic data sharing for healthcare and research.
The researchers surveyed California consumers to learn their views of privacy, security, and consent in electronic data sharing for healthcare and research together. They found considerable concern that health information exchanges will worsen privacy (40.3 percent) and security (42.5 percent). Consumers are in favor of electronic data sharing but elements of transparency are important: individual control, who has access, and the purpose for use of data.
AHRQ-funded; HS019913.
Citation: Kim KK, Joseph JG, Ohno-Machado L .
Comparison of consumers' views on electronic data sharing for healthcare and research.
J Am Med Inform Assoc 2015 Jul;22(4):821-30. doi: 10.1093/jamia/ocv014..
Keywords: Communication, Data, Electronic Health Records (EHRs), Health Information Exchange (HIE), Health Information Technology (HIT), Patient-Centered Healthcare