National Healthcare Quality and Disparities Report
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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
176 to 200 of 223 Research Studies DisplayedKeller SC, Gurses AP, Werner N
Older adults and management of medical devices in the home: five requirements for appropriate use.
This study concerns a qualitative evaluation of barriers and facilitators of appropriate use, and outcomes of inappropriate use, among older adults at the transition from hospital to home with skilled home health care (SHHC). Five requirements for the appropriate use of home medical devices were identified. A systems approach integrating the hospital with the SHHC agency is needed to make the use of home medical devices safer.
AHRQ-funded; HS022916.
Citation: Keller SC, Gurses AP, Werner N .
Older adults and management of medical devices in the home: five requirements for appropriate use.
Popul Health Manag 2017 Aug;20(4):278-86. doi: 10.1089/pop.2016.0070.
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Keywords: Elderly, Caregiving, Home Healthcare, Medical Devices, Patient Safety
Roydhouse JK, Wilson IB
Systematic review of caregiver responses for patient health-related quality of life in adult cancer care.
The aim of this review is to help cancer researchers select a validated health-related quality of life tool if they anticipate using proxy-reported data. It concluded that the evidence base is strongest for the EORTC (disease-specific tools), COOP/WONCA (generic tools), and MQOL (end-of-life-specific tools).
AHRQ-funded; HS000011.
Citation: Roydhouse JK, Wilson IB .
Systematic review of caregiver responses for patient health-related quality of life in adult cancer care.
Qual Life Res 2017 Aug;26(8):1925-54. doi: 10.1007/s11136-017-1540-6.
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Keywords: Cancer, Caregiving, Patient-Centered Outcomes Research, Quality of Life
Jutkowitz E, Kuntz KM, Dowd B
Effects of cognition, function, and behavioral and psychological symptoms on out-of-pocket medical and nursing home expenditures and time spent caregiving for persons with dementia.
This study used cross-sectional data (Aging, Demographics, and Memory Study) to estimate probabilities of experiencing outcomes by clinical features. It found that no clinical feature predicted the probability of having out-of-pocket medical expenditures. For those with medical expenditures, higher cognition and poorer function were associated with more spending.
AHRQ-funded; HS024165.
Citation: Jutkowitz E, Kuntz KM, Dowd B .
Effects of cognition, function, and behavioral and psychological symptoms on out-of-pocket medical and nursing home expenditures and time spent caregiving for persons with dementia.
Alzheimers Dement 2017 Jul;13(7):801-09. doi: 10.1016/j.jalz.2016.12.011.
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Keywords: Caregiving, Dementia, Elderly, Healthcare Costs, Long-Term Care, Neurological Disorders, Nursing Homes
Moss DK
AHRQ Author: Moss DK
Getting it right at the end of life.
With the help of a palliative care team, the author's terminally ill mother dies on her own terms.
AHRQ-authored.
Citation: Moss DK .
Getting it right at the end of life.
Health Aff 2017 Jul;36(7):1336-39. doi: 10.1377/hlthaff.2016.1279.
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Keywords: Caregiving, Palliative Care
Krishnan S, Pappadis MR, Weller SC
Needs of stroke survivors as perceived by their caregivers: a scoping review.
Caregivers usually are not involved while planning the stroke survivor's medical and rehabilitation goals and interventions. This review aimed to identify the needs of stroke survivors as perceived by their caregivers. The data synthesis from 66 studies produced the following three metathemes: (a) body functional needs, (b) activity and participatory needs, and (c) environmental needs.
AHRQ-funded; HS022134; HS024711.
Citation: Krishnan S, Pappadis MR, Weller SC .
Needs of stroke survivors as perceived by their caregivers: a scoping review.
Am J Phys Med Rehabil 2017 Jul;96(7):487-505. doi: 10.1097/phm.0000000000000717.
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Keywords: Stroke, Caregiving, Rehabilitation, Cardiovascular Conditions
Runaas L, Hanauer D, Maher M
BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric HCT.
“BMT Roadmap" is a web-based application that integrates patient-specific information and includes several domains. In this study, BMT Roadmap was provided to 10 caregivers of patients undergoing first-time hematopoietic cell transplant (HCT) . Caregivers found the tool useful and easy-to-use, leading them to want even greater access to information. BMT Roadmap was feasible, with no disruption to inpatient care.
AHRQ-funded; HS023613.
Citation: Runaas L, Hanauer D, Maher M .
BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric HCT.
Biol Blood Marrow Transplant 2017 May;23(5):813-19. doi: 10.1016/j.bbmt.2017.01.080.
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Keywords: Caregiving, Health Information Technology (HIT), Patient and Family Engagement, Children/Adolescents, Web-Based
Jolles MP, Flick JAJ, Wells R
Caregiver involvement in behavioural health services in the context of child welfare service referrals: a qualitative study.
This study presents findings from a qualitative study of caregivers involved with child welfare agencies who were referred to behavioral health services. Findings suggest that when deciding to engage in services, caregivers weigh not only their individual and family behavioral health needs but also potential agency intervention, including loss of child custody.
AHRQ-funded; HS000032.
Citation: Jolles MP, Flick JAJ, Wells R .
Caregiver involvement in behavioural health services in the context of child welfare service referrals: a qualitative study.
Child Fam Soc Work 2017 May;22(2):648-59. doi: 10.1111/cfs.12279.
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Keywords: Children/Adolescents, Caregiving, Behavioral Health, Family Health and History
Holroyd LE, Anders S, Robinson JR
This study examined the relationships among Multidimensional Health Locus of Control (MHLC) scores, information-seeking behaviors, and health-related needs in 71 pregnant women and 29 caregivers.
This study examined the relationships among Multidimensional Health Locus of Control (MHLC) scores, information-seeking behaviors, and health-related needs in 71 pregnant women and 29 caregivers.
AHRQ-funded; HS021496.
Citation: Holroyd LE, Anders S, Robinson JR .
This study examined the relationships among Multidimensional Health Locus of Control (MHLC) scores, information-seeking behaviors, and health-related needs in 71 pregnant women and 29 caregivers.
AMIA Annu Symp Proc 2017 Apr 16;2017:902-11..
Keywords: Caregiving, Education: Patient and Caregiver, Health Information Technology (HIT), Pregnancy, Web-Based
duRivage N, Ross M, Mayne SL
Asthma Control Test.
In this study, the investigators compared results of a modified version of the Asthma Control Test using parent proxy report (PP-ACT) with results reported by children and parents using the validated Childhood-Asthma Control Test (C-ACT). ). The investigators indicate that that while the PP-ACT missed few children with uncontrolled asthma and may simplify reporting of asthma control in circumstances when child report is not feasible or creates barriers to survey receipt, limitations of proxy reporting should be considered.
AHRQ-funded; HS022689.
Citation: duRivage N, Ross M, Mayne SL .
Asthma Control Test.
Clin Pediatr 2017 Apr;56(4):341-47. doi: 10.1177/0009922816675013..
Keywords: Asthma, Caregiving, Children/Adolescents, Chronic Conditions, Patient Self-Management
Krishnan S, York MK, Backus D
Coping with caregiver burnout when caring for a person with neurodegenerative disease: a guide for caregivers.
It is important for you to know if you have caregiver burnout, or the common triggers that may cause your burnout. By recognizing and addressing these factors, you will be able to take healthy and manageable control over your caregiver duties. The authors offer a number of specific recommendations to relieve caregiver stress and burden.
AHRQ-funded; HS022134.
Citation: Krishnan S, York MK, Backus D .
Coping with caregiver burnout when caring for a person with neurodegenerative disease: a guide for caregivers.
Arch Phys Med Rehabil 2017 Apr;98(4):805-07. doi: 10.1016/j.apmr.2016.11.002.
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Keywords: Caregiving, Neurological Disorders, Stress
Duckworth M, Leung E, Fuller T
Nurse, patient, and care partner perceptions of a personalized safety plan screensaver.
A patient safety plan dashboard was developed that captures disparate data from the electronic health record that is then displayed as a personalized bedside screensaver. End user perceptions of the content and interface of the personalized safety plan screensavers were identified and strategies to overcome the barriers to use for future iterations were defined. Differences emerged stemming from each group of end users' role on the care team.
AHRQ-funded; HS023535.
Citation: Duckworth M, Leung E, Fuller T .
Nurse, patient, and care partner perceptions of a personalized safety plan screensaver.
J Gerontol Nurs 2017 Apr;43(4):15-22. doi: 10.3928/00989134-20170313-05.
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Keywords: Elderly, Electronic Health Records (EHRs), Health Information Technology (HIT), Caregiving, Patient Safety, Patient and Family Engagement, Care Coordination
Hoffman GJ, Hays RD, Wallace SP
Receipt of caregiving and fall risk in US community-dwelling older adults.
The researchers examined whether receipt of low (0-13 weekly hours) and high levels (>/=14 weekly hours) of informal care or any formal care is associated with lower risk of falls and fall-related injuries (FRI) among community-dwelling older adults. They found that among individuals with >/=3 activities of daily living, fall risks were reduced by 21 percent for those receiving high levels of informal care.
AHRQ-funded; HS000046.
Citation: Hoffman GJ, Hays RD, Wallace SP .
Receipt of caregiving and fall risk in US community-dwelling older adults.
Med Care 2017 Apr;55(4):371-78. doi: 10.1097/mlr.0000000000000677.
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Keywords: Caregiving, Elderly, Falls, Risk, Patient Safety
Cornelius T, Earnshaw VA, Menino D
Treatment motivation among caregivers and adolescents with substance use disorders.
The researchers used self-determination theory to examine intersecting motivational narratives among caregivers and adolescents in substance use disorder treatment. Relationships between motivation, interpretation of caregiver pressures, adolescent autonomy, and relatedness were also explored. Their results suggest the importance of intrinsically motivated treatment, and highlight autonomy support and relatedness as mechanisms that might facilitate treatment engagement.
AHRQ-funded; HS022986.
Citation: Cornelius T, Earnshaw VA, Menino D .
Treatment motivation among caregivers and adolescents with substance use disorders.
J Subst Abuse Treat 2017 Apr;75:10-16. doi: 10.1016/j.jsat.2017.01.003.
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Keywords: Caregiving, Children/Adolescents, Patient Adherence/Compliance, Patient and Family Engagement, Substance Abuse
Berridge C
Active subjects of passive monitoring: responses to a passive monitoring system in low-income independent living.
The researchers examined the range of ways older adults relate to passive monitoring in low-income independent-living residences is presented. They found that assumptions built into the technology about how older adults live presented a problem for many users who experience unwanted disruptions and threats to their behavioral autonomy. Also, the resident responses challenged the dominant image of residents as passive subjects of a passive monitoring system.
AHRQ-funded; HS000011.
Citation: Berridge C .
Active subjects of passive monitoring: responses to a passive monitoring system in low-income independent living.
Ageing Soc 2017 Mar;37(3):537-60. doi: 10.1017/s0144686x15001269.
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Keywords: Caregiving, Elderly, Health Information Technology (HIT), Low-Income
Jolles MP, Wells R
Does caregiver participation in decision making within child welfare agencies influence children's primary and mental health care service use?
This study uses a national sample of children involved with child welfare to compare their health service use between those children served through a participatory decision making (PDM) practice and those who did not experience it. It concluded that lower-risk families were more likely to be served through PDM which was positively associated with child use of primary health services.
AHRQ-funded; HS000032.
Citation: Jolles MP, Wells R .
Does caregiver participation in decision making within child welfare agencies influence children's primary and mental health care service use?
Child Care Health Dev 2017 Mar;43(2):192-201. doi: 10.1111/cch.12384.
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Keywords: Caregiving, Children/Adolescents, Shared Decision Making, Health Services Research (HSR), Patient and Family Engagement
Boss EF, Links AR, Saxton R
Parent experience of care and decision making for children who snore.
The researchers identified factors associated with parental experience and decision making in pediatric sleep-disordered breathing (SDB) and adenotonsillectomy (AT) surgery. They found that while clinical factors were influential for decision making, interpersonal factors helped parents feel comfortable and influenced their overall experience
AHRQ-funded; HS022932.
Citation: Boss EF, Links AR, Saxton R .
Parent experience of care and decision making for children who snore.
JAMA Otolaryngol Head Neck Surg 2017 Mar;143(3):218-25. doi: 10.1001/jamaoto.2016.2400.
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Keywords: Children/Adolescents, Sleep Problems, Caregiving, Patient Experience, Shared Decision Making, Clinician-Patient Communication
Gaugler JE, Jutkowitz E, Shippee TP
Consistency of dementia caregiver intervention classification: an evidence-based synthesis.
The objective of this review was to systematically examine inconsistencies in how dementia caregiver interventions are classified. When subjecting the classification of interventions to descriptive empirical analysis, extensive inconsistency was apparent. The authors concluded that substantial inconsistency in how dementia caregiver interventions are classified across systematic reviews has hindered the science and practice of dementia caregiver interventions.
AHRQ-funded; HS022445.
Citation: Gaugler JE, Jutkowitz E, Shippee TP .
Consistency of dementia caregiver intervention classification: an evidence-based synthesis.
Int Psychogeriatr 2017 Jan;29(1):19-30. doi: 10.1017/s1041610216001514.
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Keywords: Caregiving, Dementia, Evidence-Based Practice
Antonio MG, Courtney KL, Lingler JH
Translating behavior change techniques to new delivery mediums.
The translation of successful behavior change interventions to new delivery mechanisms requires an understanding of the underlying concepts that led to its success. A communication module within a multi-user telehealth kiosk is used as an example of how behavior change techniques from a "live" intervention may be represented in an information technology-delivered intervention.
AHRQ-funded; HS022889.
Citation: Antonio MG, Courtney KL, Lingler JH .
Translating behavior change techniques to new delivery mediums.
Stud Health Technol Inform 2017;234:18-23.
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Keywords: Healthcare Delivery, Caregiving, Telehealth, Health Information Technology (HIT)
Riley K, Nazareno J, Malish S
24-hour care: work and sleep conditions of migrant Filipino live-in caregivers in Los Angeles.
The authors examined sleeping conditions and outcomes for live-in formal caregivers. They found that caregivers rated sleep quality as lower while at work and that over 40% reported excessive daytime sleepiness. They concluded that impacts on sleep quality pose risks for work-related injury and errors in patient care.
AHRQ-funded; HS000011.
Citation: Riley K, Nazareno J, Malish S .
24-hour care: work and sleep conditions of migrant Filipino live-in caregivers in Los Angeles.
Am J Ind Med 2016 Dec;59(12):1120-29. doi: 10.1002/ajim.22647.
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Keywords: Caregiving, Racial and Ethnic Minorities, Sleep Problems
Gaugler JE, Reese M, Tanler R
Care to Plan: an online tool that offers tailored support to dementia caregivers.
This study developed and tested the feasibility of "Care to Plan" (CtP), an online resource for dementia caregivers (e.g., relatives or unpaid nonrelatives) that generates tailored support recommendations. It concluded that, based on the integrated qualitative and quantitative data, CtP was simple and easy to understand. The streamlined visual layout facilitated utility and the individualized recommendations could meet the needs of users.
AHRQ-funded; HS20948; HS22445.
Citation: Gaugler JE, Reese M, Tanler R .
Care to Plan: an online tool that offers tailored support to dementia caregivers.
Gerontologist 2016 Dec;56(6):1161-74. doi: 10.1093/geront/gnv150.
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Keywords: Caregiving, Dementia, Elderly, Web-Based, Tools & Toolkits
Coyle CE, Putman M, Kramer J
The role of aging and disability resource centers in serving adults aging with intellectual disabilities and their families: findings from seven states.
The purpose of this project was to assess the activities of aging and disability resource centers (ADRCs) as they seek to serve older adults with intellectual disabilities and their family caregivers. Results of this qualitative analysis indicate that ADRCs are not focusing explicitly on adults aging with intellectual and developmental disabilities and their family caregivers.
AHRQ-funded; HS017589.
Citation: Coyle CE, Putman M, Kramer J .
The role of aging and disability resource centers in serving adults aging with intellectual disabilities and their families: findings from seven states.
J Aging Soc Policy 2016;28(1):1-14. doi: 10.1080/08959420.2015.1096142.
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Keywords: Caregiving, Disabilities, Elderly, Long-Term Care
Kavalieratos D, Corbelli J, Zhang D
Association between palliative care and patient and caregiver outcomes: a systematic review and meta-analysis.
This review sought to determine the association of palliative care with quality of life (QOL), symptom burden, survival, and other outcomes for people with life-limiting illness and for their caregivers. It concluded that the association between palliative care and QOL was attenuated but remained statistically significant whereas the association with symptom burden was not statistically significant . There was no association between palliative care and survival.
AHRQ-funded; HS022989.
Citation: Kavalieratos D, Corbelli J, Zhang D .
Association between palliative care and patient and caregiver outcomes: a systematic review and meta-analysis.
JAMA 2016 Nov 22;316(20):2104-14. doi: 10.1001/jama.2016.16840.
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Keywords: Caregiving, Palliative Care, Quality of Life, Patient-Centered Outcomes Research
Valdez RS, Holden RJ
Health care human factors/ergonomics fieldwork in home and community settings.
The researchers offered several strategies that human factors and ergonomics professionals can use before, during, and after home and community site visits to optimize fieldwork and mitigate challenges in these settings.
AHRQ-funded; HS022930; HS018809.
Citation: Valdez RS, Holden RJ .
Health care human factors/ergonomics fieldwork in home and community settings.
Ergon Des 2016 Oct;24(4):4-9. doi: 10.1177/1064804615622111.
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Keywords: Caregiving, Community-Based Practice, Home Healthcare, Workflow
Schulz R, Beach SR, Matthews JT
Caregivers' willingness to pay for technologies to support caregiving.
The authors reported the results of a study designed to assess whether and how much informal caregivers are willing to pay for technologies designed to help monitor and support care recipients (CRs) in performing kitchen and personal care tasks. By web survey, they found that about 20% of caregivers were not willing to pay anything for kitchen and self-care technologies. Among those willing to pay, the mean amount was approximately $50 per month for monitoring technologies and $70 per month for technologies that both monitored and provided some assistance. Younger caregivers, those caring for a person with Alzheimer's disease, and caregivers with more positive attitudes toward and experience with technology were willing to pay more. Most caregivers felt that the government or private insurance should help pay for these technologies.
AHRQ-funded; HS022889.
Citation: Schulz R, Beach SR, Matthews JT .
Caregivers' willingness to pay for technologies to support caregiving.
Gerontologist 2016 Oct;56(5):817-29. doi: 10.1093/geront/gnv033.
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Keywords: Caregiving, Healthcare Costs, Health Information Technology (HIT)
Garfield CF, Simon CD, Rutsohn J
Paternal and maternal testosterone in parents of NICU infants transitioning home.
This study examined testosterone levels for parents of very low-birth-weight infants, including links between salivary testosterone and infant factors (such as breast-feeding), psychosocial stress, and changes over time. Using multilevel modeling approaches, the researchers reported significant associations between paternal testosterone by time and psychosocial adjustment and between both paternal and maternal testosterone and infant feeding mode.
AHRQ-funded; R21 HS020316.
Citation: Garfield CF, Simon CD, Rutsohn J .
Paternal and maternal testosterone in parents of NICU infants transitioning home.
J Perinat Neonatal Nurs 2016 Oct/Dec;30(4):349-58. doi: 10.1097/jpn.0000000000000218.
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Keywords: Newborns/Infants, Stress, Caregiving, Hospital Discharge