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AHRQ Research Studies
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Research Studies is a compilation of published research articles funded by AHRQ or authored by AHRQ researchers.
Results
1 to 10 of 10 Research Studies DisplayedBurstin H, Curry S, Ranney ML
AHRQ Author: Jain A
Identifying credible sources of health information in social media: phase 2-considerations for non-accredited nonprofit organizations, for-profit entities, and individual sources.
This paper (which included an AHRQ author) objective was to develop principles and attitudes to guide social media and other digital platforms to rigorously identify credible sources of health information. This paper was partially funded by YouTube. Phase 1 of this study was completed in 2021 by an expert advisory group convened by the National Academy of Medicine (NAM) which yielded foundational principles and attributes for determining credibility of health information sources, but only for US sources. This paper describes Phase 2, which was carried out by a multidisciplinary, independent advisory committee convened by the Council of Medical Specialty Societies (CMSS) in collaboration with NAM and WHO and expanded from Phase 1 to include global sources. The Phase 2 advisory committee examined and deliberated on the three principles established during Phase 1 and their defining attributes in individual breakout groups. The focus was on one of three potential sources of credible health information: for-profit organizations, non-accredited nonprofit organizations, and individuals. A draft of the proposed new attributes, a related questionnaire and a preliminary draft of this paper was posted for public comment from September 9 to 19, 2022. A final virtual meeting was convened so the entire committee could discuss and incorporate feedback from the public comments. The principles of diversity, equity, and inclusion (DEI) was identified as of sufficient importance to elevate it as a new principle. A table showing the four principles and the attributes for each of the sources is included.
AHRQ-authored.
Citation: Burstin H, Curry S, Ranney ML .
Identifying credible sources of health information in social media: phase 2-considerations for non-accredited nonprofit organizations, for-profit entities, and individual sources.
NAM Perspect 2023 May 23; 2023. doi: 10.31478/202305b..
Keywords: Social Media, Education: Patient and Caregiver, Health Information Technology (HIT)
Margolis MA, Brewer NT, Shah PD
Stories about HPV vaccine in social media, traditional media, and conversations.
To understand how stories from media and social interactions shape parents' HPV vaccination decisions, the authors sought to characterize parents' exposure to these stories, as well as associations between story exposure and vaccination behavior. They found that stories of HPV vaccine harms may be associated more strongly with vaccination behavior than stories of HPV vaccine preventable diseases. They recommended that communication campaigns consider strategies to elevate stories of preventable diseases in social and traditional media.
AHRQ-funded; HS000032.
Citation: Margolis MA, Brewer NT, Shah PD .
Stories about HPV vaccine in social media, traditional media, and conversations.
Prev Med 2019 Jan;118:251-56. doi: 10.1016/j.ypmed.2018.11.005..
Keywords: Caregiving, Children/Adolescents, Communication, Education: Patient and Caregiver, Health Promotion, Infectious Diseases, Prevention, Sexual Health, Social Media, Vaccination
Ruck JM, Henderson ML, Eno AK
Use of Twitter in communicating living solid organ donation information to the public: an exploratory study of living donors and transplant professionals.
As transplant centers start leveraging Twitter for information dissemination and public engagement, it is important to understand current living solid organ donation-related Twitter use. This paper investigated use of Twitter in communicating living solid organ donation information to the public. It provides insight into how the social media platform may be used to communicate about and disseminate information about living donation.
AHRQ-funded; HS023876.
Citation: Ruck JM, Henderson ML, Eno AK .
Use of Twitter in communicating living solid organ donation information to the public: an exploratory study of living donors and transplant professionals.
Clin Transplant 2019 Jan;33(1):e13447. doi: 10.1111/ctr.13447..
Keywords: Transplantation, Social Media, Communication, Education: Patient and Caregiver
Shoup JA, Narwaney KJ, Wagner NM
Social media vaccine websites: a comparative analysis of public and moderated websites.
This study examined vaccine social media (VSM) websites and compared expert moderated VSM websites to nonmoderated websites. Accuracy of information, vaccine stance, and tone was coded for 79 public blogs and discussion boards and 61 expert moderated VSM websites. The public VSM websites had a lot of inaccurate information and tended to have a negative stance towards vaccines. Expert moderated websites had a more civil tone, little to no inaccurate information and very little participant-to-participant interaction.
AHRQ-funded; HS021492.
Citation: Shoup JA, Narwaney KJ, Wagner NM .
Social media vaccine websites: a comparative analysis of public and moderated websites.
Health Educ Behav 2018 Jun;46(3):454-62. doi: 10.1177/1090198118818253..
Keywords: Education: Patient and Caregiver, Social Media, Vaccination
Mogul DB, Henderson ML, Bridges JFP
Expanding the Facebook platform to engage and educate online communities.
This article discusses the development and use of a mobile application (app) called Liver Space that was developed through Facebook’s platform. This app is for the pediatric liver community including patients and caregivers. Unlike most Facebook health groups, this one is vetted by healthcare providers who are specialists. The app provides up-to-date information and includes emerging news, summaries from important scholarly journals and human interest stories. There is an “ask an expert” function incorporated into Liver Space. Also included in the app is the ability for users to track their labs and weight and to graph the data.
AHRQ-funded; HS023876.
Citation: Mogul DB, Henderson ML, Bridges JFP .
Expanding the Facebook platform to engage and educate online communities.
Am J Gastroenterol 2018 Apr;113(4):457-58. doi: 10.1038/ajg.2017.450..
Keywords: Social Media, Education: Patient and Caregiver, Clinician-Patient Communication, Communication, Health Information Technology (HIT), Patient and Family Engagement, Patient Self-Management
Mogul DB, Nagy PG, Bridges JFP
Building stronger online communities through the creation of Facebook-integrated health applications.
Social media, such as Facebook, provides a powerful mechanism to connect individuals with similar diseases, but current platforms do not achieve their full potential to help patients communicate with one another or with the medical community. The authors of this viewpoint article believe that an opportunity exists for health care professionals to strengthen online communities by creating apps that use the Facebook platform or a programming interface. Development of such apps are discussed, with an eye toward the needs of the patient, parent, or caregiver as end-users and involving their input.
AHRQ-funded; HS023876.
Citation: Mogul DB, Nagy PG, Bridges JFP .
Building stronger online communities through the creation of Facebook-integrated health applications.
JAMA Pediatr 2017 Oct;171(10):933-34. doi: 10.1001/jamapediatrics.2017.2300..
Keywords: Clinician-Patient Communication, Communication, Education: Patient and Caregiver, Health Information Technology (HIT), Social Media, Web-Based
Lee JL, Frey M, Frey P
Seeing is engaging: vlogs as a tool for patient engagement.
This paper presents The Frey Life, an example of a patient video log (vlog), to show how the platform models and fosters engagement, and provides the patient perspective. The authors discuss potential concerns regarding health vlogs, and suggest implications for physicians, researchers, and medical institutions regarding how to use patient vlogs as a resource.
AHRQ-funded; HS000029.
Citation: Lee JL, Frey M, Frey P .
Seeing is engaging: vlogs as a tool for patient engagement.
Patient 2017 Jun;10(3):267-70. doi: 10.1007/s40271-017-0215-2..
Keywords: Education: Patient and Caregiver, Patient and Family Engagement, Patient-Centered Healthcare, Social Media
Menefee HK, Thompson MJ, Guterbock TM
Mechanisms of communicating health information through Facebook: implications for consumer health information technology design.
The authors aimed to characterize patients' use of communication mechanisms within Facebook for health information communication to provide insight into how consumer HIT solutions may be better designed to meet patients' communication needs and preferences. They found that participants consider multiple factors, including what information they intended to share, what they were trying to accomplish, attributes of technology, and attributes and communication practices of their social networks.
AHRQ-funded; HS022930.
Citation: Menefee HK, Thompson MJ, Guterbock TM .
Mechanisms of communicating health information through Facebook: implications for consumer health information technology design.
J Med Internet Res 2016 Aug 11;18(8):e218. doi: 10.2196/jmir.5949.
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Keywords: Communication, Education: Patient and Caregiver, Health Information Technology (HIT), Social Media, Web-Based
Shoup JA, Wagner NM, Kraus CR
Development of an interactive social media tool for parents with concerns about vaccines.
The researchers describe a process for designing, building, and evaluating a theory-driven social media intervention tool to help reduce parental concerns about vaccination. Based on focus groups, interviews, and usability evaluations, they made revisions to the tool’s content, design, functionality, and overall look and feel. They concluded that engaging parents at all stages of development is critical when designing a tool to address concerns about childhood vaccines.
AHRQ-funded; HS021492; HS019760.
Citation: Shoup JA, Wagner NM, Kraus CR .
Development of an interactive social media tool for parents with concerns about vaccines.
Health Educ Behav 2015 Jun;42(3):302-12. doi: 10.1177/1090198114557129..
Keywords: Vaccination, Social Media, Health Information Technology (HIT), Education: Patient and Caregiver
Robinson MN, Tansil KA, Elder RW
AHRQ Author: Miller T
Mass media health communication campaigns combined with health-related product distribution: a community guide systematic review.
The researchers conducted a systematic review to evaluate the effectiveness of health communication campaigns that use multiple channels, including mass media, and distribute health-related products. They concluded that health communication campaigns that combine mass media and other communication channels with distribution of free or reduced-price health-related products are effective in improving healthy behaviors. They expect this intervention to be applicable across U.S. demographic groups, with appropriate population targeting.
AHRQ-authored.
Citation: Robinson MN, Tansil KA, Elder RW .
Mass media health communication campaigns combined with health-related product distribution: a community guide systematic review.
Am J Prev Med 2014 Sep;47(3):360-71. doi: 10.1016/j.amepre.2014.05.034.
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Keywords: Communication, Education: Patient and Caregiver, Health Promotion, Lifestyle Changes, Social Media, Tobacco Use