CAHPS® 2025 Research Meeting: Strengthening Partnerships with Patients and Families to Assess and Improve the Experience of Care
Contents
- Summary
- Keynote Speaker and Slides
- Part I Speakers and Slides
- Part II Speakers and Slides
- Video Recordings
Summary
On September 18, AHRQ’s Consumer Assessment of Healthcare Providers and Systems (CAHPS®) program hosted a virtual research meeting that focused on the integral role of patients and families in the development and implementation of care experience assessments and quality improvement strategies.
Keynote Speaker
Maura Cass
Founder, Elston Co.
Former Partner and Head of Health, IDEO
Engaging Meaningfully with Patients & Families: Building Capacity for Human-Centered Design (PDF, 1.5 MB)
Part I: Engaging Patients and Families in Survey Development and Other Research
The CAHPS Survey Development Process: It All Starts with Patients, Families, and Communities
Julie Brown
Senor Director of Survey Market Development Process
RAND
Overview of the CAHPS Survey Development Process (PDF, 500 KB)
Susan Perez, Ph.D., M.P.H.
Professor of Public Health
Sacramento State University
How the PCORI Method of Patient Engagement Differs from the CAHPS Approach
Karen Sepucha, Ph.D.
Director
MGH Health Decisions Science Center
Susan Strong (Patient Reactor)
PCORI IMPACT Study
Lived Experience at the Table: The PCORI Model in Practice (PDF, 1.7 MB)
Part II: Partnering with Patients and Families to Improve the Experience of Care
Experience Based Co-Design Methods and Applications
Bev Fitzsimons, M.Sc.
Former CEO of The Point of Care Foundation
Overview of Experience-Based Co-Design (PDF, 476 KB)
Moe Ade (Patient Co-Investigator)
Listen2Baby Project
Sumayya Mulla (Patient Co-Investigator)
Listen2Baby Project
Engaging Patients and Families in the Improvement Process
Nikki Montgomery, M.A., M.Ed.
Director of Strategy and Communication
Family Voices
Engaging Families on Pediatric Improvement Teams (PDF, 494 KB)
Marie-Pascale Pomey, M.D., Ph.D.
Full Professor, Department of Management,
Evaluation and Policy in Healthcare and Faculty of Medicine
University of Montreal
Engaging Patients and Families in Improving Quality and Safety—The Québec model (PDF, 4.5 MB)
Video Recordings
Access the playlist to view recordings of speaker presentations.
Engaging Meaningfully with Patients and Families (39:58)
Maura Cass provided the keynote address at the 2025 AHRQ CAHPS® Virtual Research Meeting. Cass spoke about engaging meaningfully with patients and families through building capacity for human-centered design.
The CAHPS Survey Development Process (43:29)
Julie Brown provided an overview of the CAHPS survey development process and how capturing the patient and family voices in healthcare quality measurement is included in this process. Dr. Susan Perez provided insight into the patient and community engagement perspective and how to hear the patient’s voice.
How the PCORI Method of Patient Engagement Differs from the CAHPS Approach (34:17)
Karen Sepucha and Susan Strong discussed the PCORI Model and how their mission is to provide patient-centered research outcomes.
Experienced Based Co-Design Methods and Applications (36:55)
Bev Fitzsimons, Mo Ade, and Sumayya Mulla provided an overview of the experience-based co-design process that provides steps on how to put patients at the heart of quality improvement while also taking care of staff.
Engaging Patients and Families in the Improvement Process (45:37)
Nikki Montgomery spoke about engaging patients and families on pediatric improvement teams through inclusive participation and leadership roles can transform healthcare systems. Dr. Marie-Pascale Pomey discussed the Québec model of patient partnership in healthcare, and the importance of patient partnerships in healthcare.
